On September 12, 2025, Beacon Hill Golf Club and Banquet Center in Commerce Township, MI will host the 3rd annual GolfATAXIA Scramble in honor of Lilah and Scarlett Lempicki, who both live with Friedreich’s Ataxia (FA) - a genetic, progressive neuromuscular disease that impacts an estimated 5,000 people in the United States. Since Lilah and Scarlett were diagnosed at the age of seven, they have gradually been losing abilities including their fine motor skills and ability to walk.
Proceeds from the GolfATAXIA Scramble will support the Friedreich’s Ataxia Research Alliance (FARA) in their efforts to find treatments and cures for FA
Monetary donations of $100+ and auction donations of equivalent values make you or your business eligible for sponsor recognition at the levels below.
Note: This page is for sponsorship and donations only. Learn more about participating in this event on the GolfAtaxia Facebook Page.
Please note: Bank transfer payments may take up to 7 business days to process and reflect in fundraising totals
Frequently asked questions
Is my donation secure?
Your security and privacy is our highest priority. We use industry-standard SSL technology to keep your information safe and secure.
Do I get a receipt?
Yes, we’ll send a receipt to the email address you provide when donating. The receipt will include your donation details, such as the date, amount, and any beneficiary information.
How is my personal data handled?
Your personal data is processed in accordance with FARA's privacy policy available at https://www.curefa.org/privacy-policy/ and also in accordance with the privacy policy of GoFundMe, our website partner.
Is this donation tax deductible?
Friedreich's Ataxia Research Alliance is a 501(c)3 tax-exempt organization and your donation is tax-deductible within the guidelines of U.S. law. To claim a donation as a deduction on your U.S. taxes, please keep your email donation receipt as your official record. We'll send it to you upon successful completion of your donation.
How will this appear on my credit card statement?
Your gift will appear as a charge from "CURE FA ORG" on your bank or credit card statement.
Can I donate by mailing a check?
You can send a check or money order made out to FARA at:
FARA 533 W. Uwchlan Ave Downingtown, PA 19335 USA.
Please note "GolfATAXIA" on the memo line.
Can I donate stock to FARA?
FARA can help facilitate a gift of stock or securities. For specific details about offering FARA stock options, please contact stockgifts@curefa.org.
(make sure it is GIFTS not GIFT)
Can this donation be matched by my employer?
You can see if your employer may match your contribution at https://doublethedonation.com/fara If you need assistance from someone at FARA, please contact us by email at info@cureFA.org or call our office at (484) 879-6160.
Can I donate through my Donor Advised Fund (DAF)?
Yes! Please contact your bank/institution/financial advisor to coordinate the disbursement. It is helpful for tracking if you give them permission to release your name to FARA and make sure to include any fundraising page or team you’d like your donation credited to. Please let us know to expect your gift by emailing info@curefa.org
